INSPIRING FIGURE IN CYSTIC FIBROSIS COMMUNITY:Mallory’s mother wrote the children’s book MALLORY’S 65 ROSES to explain CF for children; it sold over 30k copies and made Mallory herself known within the cystic fibrosis community. Her family started the annual Mallory’s Garden event, which has raised over $5 million for CF research. And Mallory’s own social media campaign, Lunges4Lungs, raised $100k during the last six months of her life and was featured on the Today show (https://on.today.com/2Oyfeyu). Mallory’s parents are donating 100% of the book’s profits to phage therapy research through a new initiative at the Cystic Fibrosis Foundation, Mallory’s Legacy Fund, and made the inaugural grant to the first center in the country doing phage research, as well as to other non-profits hosting events (Make-A-Wish, Foster Care Counts, children’s hospitals, and more). Her story was covered in Time, L.A. Times, on PBS NewsHour, and in numerous other media outlets.
MEDIA: Before her death, Mallory prepared video and audio that we will use. BuzzFeed is set to do a piece dedicated to Mallory’s story. A powerful video trailer of Mallory will be screened in Laemmle Theaters in LA and is available for social media.
DYNAMIC PUBLICIST MOTHER: Diane Shader Smith is dedicating all of her time and resources to the book’s publication, hoping that it will inspire others living with disease. We will also have support from Diane’s PR firm, Rogers and Cowan. She has already confirmed over 42 events for the book’s launch, including TEDx Palo Alto, the Los Angeles Times Festival of Books, and PEN; has arranged for the Jacob Jonas Dance Company to perform their piece “Obstacles” with Mallory’s voice narrating; and is coordinating with CF centers and hospitals across the country to promote the book.
MALLORY WAS A BURGEONING PUBLISHED WRITER WHO STUDIED WITH TOBIAS WOLFF: Her diaries are those of a natural writer whose talent becomes increasingly evident as she matures from a teenager into a young adult. She was the author of The Gottlieb Native Garden (National Wildlife Federation), worked as a ghostwriter, and wrote a number of radio pieces (bit.ly/2IwBfHB).
“Brilliant, compassionate, and radically optimistic, Salt in My Soul captures the heartbreaking beauty of being alive. I feel fuller, more educated, and more human having read this book. Mallory Smith may have salt in her soul, but she’s all firecracker. She is a gift and so is her writing—every grain of it.”—Beck Dorey-Stein, New York Times bestselling author of From the Corner of the Oval
“In Salt in My Soul, Mallory Smith is bracingly candid and unflinching in her portrayal of life with chronic illness. Yet she also writes with warmth and humor about the everyday experiences of growing up as a young woman in search of meaning, purpose, and love while knowing her life will likely be cut short. This is a deeply moving book full of wisdom about health, life, and love—and about the importance of finding happiness wherever and whenever we can. Salt in My Soul broke my heart but also inspired me to make the most of every day.”—Will Schwalbe, New York Times bestselling author of The End of Your Life Book Club
“Those of us fortunate enough to know the amazing Mallory Smith learned that no matter how sick, she would find escape from the prison of her illness to play water polo, to be prom queen, to go to Stanford, to graduate Phi Beta Kappa, and to know true love in her twenty-five years. With the strength of her parents, the support of her many friends, and her own great grit, Mallory lived her ambitions. Salt in My Soul is a beautiful, brave, unsparingly insightful account of a courageous girl who becomes a woman warrior and fights for her life while living it fully.”—Eric Lax, author of The Mold in Dr. Florey’s Coat
“With spicy wit and brutal honesty, Salt in My Soul reveals the heartache and courage of a young woman who always knew that her life would be cut short by a chronic disease. Read this memoir and you’ll be astonished by Mallory’s bravery and uplifted by her vivacious spirit.”—Randi Hutter Epstein, MD, MPH, writer in residence, Yale Medical School, author of Aroused
An email has been sent out with instructions for resetting your password.