Living with Alpha-1 Antitrypsin Deficiency (A1AD)
Complete Guide to Risk Factors, Symptoms & Treatment Options
HEALTH & FITNESS / Diseases / Genetic
Aug 27, 2019
6.03 x 9.02 x 0.21 in
- Author Bio
A knowledgeable handbook with a patient’s perspective for those afflicted with the incurable disease known as Alpha-1 Antitrypsin deficiency (A1AD).
Alpha-1 Antitrypsin deficiency (A1AD) is a rare genetic, incurable disease which causes the liver to not produce enough of a certain protein that protects and keeps the lungs functional. 100,000 people in the United States have A1AD and 19 million more are carriers for the disease. Since it’s so rare, the information available about A1AD has been lacking especially for those suffering unknowingly with the disease. Living with Alpha-1 Antitrypsin Deficiency offers the most up-to-date and comprehensive information on this illness and includes first-hand experience from someone managing the disease. Living with Alpha-1 Antitrypsin Deficiency also includes expert advice from doctors and researchers tackling the disease, with tips on recognizing symptoms and getting the most effective help possible.
AUTHORITATIVE RESOURCE BY EXPERIENCED AUTHOR. Combining expert advice from the foremost researchers in alpha-1 antitrypsin deficiency with the personal touch of an author who has personally struggled with the disease, the book presents modern-day landscape of A1AD and offers detailed advice on how to best treat and manage the condition.
EASY TO UNDERSTAND. Presented in clear, concise language without reliance on medical jargon or complicated explanations, the book is written for patients—by a patient.
COMPREHENSIVE GUIDE. From outlining the basics of A1AD, explaining the resources available and presenting the various treatment options, this book contains everything needed to get a better handle on this condition.
Marketing: Feature on Hatherleigh Press website and social media
Viral marketing targeting health and medical communities
Press Releases to health, fitness, and wellness publications
Social media outreach (Twitter, Facebook, Goodreads, YouTube)
Publicity: ARCs available to key media, targeting health and wellness editors with secondary mailing to fitness editors
Press Release broadcast one month prior to publication to 3,000 - 5,000 media outlets including bloggers and online outlets
Local author book signings in South Carolina
“Samantha Bowick expertly blends clinical explanations of Alpha-1 Antitrypsin Deficiency with patient testimony, providing insight into the everyday challenges experienced by those who battle this rare condition. Living with Alpha-1 Antitrypsin Deficiency outlines the common misconceptions about this condition and the financial hardship it places on patients. Whether you’re an Alpha-1 patient, a family member or friend, there is something for everyone within Bowick’s work.”
—Scott Bruun, Executive Director of the Chronic Disease Coalition