Advanced Search
 

Add Best Comp

Add comparable title

Remove comparable title

Highlights Brochure – Clients Green – Spring 2021

more
  • Other Formats

    9780807055472 Paperback / softback, Trade, , $22.95 CAD 9780807040263 Electronic book text, Reflowable, , EPUB, $33.95 CAD 9780807040270 Downloadable audio file, $25 CAD 9780807040287 Downloadable audio file
  • Sales Rights

    For sale with exclusive rights in: AD AE AF AG AI AL AM AO AQ AR AS AT AU AW AX AZ BA BB BD BE BF BG BH BI BJ BL BM BN BO BQ BR BS BT BV BW BY BZ CA CC CD CF CG CH CI CK CL CM CN CO CR CU CV CW CX CY CZ DE DJ DK DM DO DZ EC EE EG EH ER ES ET FI FJ FK FM FO FR GA GB GD GE GF GG GH GI GL GM GN GP GQ GR GS GT GU GW GY HK HM HN HR HT HU ID IE IL IM IN IO IQ IR IS IT JE JM JO JP KE KG KH KI KM KN KP KR KW KY KZ LA LB LC LI LK LR LS LT LU LV LY MA MC MD ME MF MG MH MK ML MM MN MO MP MQ MR MS MT MU MV MW MX MY MZ NA NC NE NF NG NI NL NO NP NR NU NZ OM PA PE PF PG PH PK PL PM PN PR PS PT PW PY QA RE RO RS RU RW SA SB SC SD SE SG SH SI SJ SK SL SM SN SO SR SS ST SV SX SY SZ TC TD TF TG TH TJ TK TL TM TN TO TR TT TV TW TZ UA UG UM US UY UZ VA VC VE VG VI VN VU WF WS YE YT ZA ZM ZW
  • Supply Detail

    Distributor: Random House, Inc. Availability: On Sale Date:Jan 19, 2021 Carton Quantity:12 $33.95 CAD
    $24.95 USD
  • Catalogues

Harnessing Grief
 A Mother's Quest for Meaning and Miracles
By (author): Maria J. Kefalas
9780807040256 Hardcover English General Trade BIOGRAPHY & AUTOBIOGRAPHY / Personal Memoirs Jan 19, 2021
$33.95 CAD
Active 5.72 x 8.76 x 0.8 in | 0.82 lb 200 pages Beacon Press
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others.

When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them.

When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once.

This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.”

They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation.

A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.

Story Locale: Philadelphia

COMPELLING STORY OF A PATIENT ADVOCATE: Maria Kefalas’s moving story from mourning her daughter’s disease, to helping other children with MLD receive treatment, will appeal to readers struggling with similar issues and inspire them to use the “superpower of grief” to find a purpose and to thrive.

STRONG PROFILE: Has been featured on CBS Sunday Morning with Jane Pauley, spotlighted by the Chan-Zuckerberg Initiative, and Maria’s writings have appeared in The Washington Post, The Chronicle of Higher Education, The Root, STAT, Slate, The Mighty, and The Huffington Post.

DYNAMIC FUNDRAISER: Maria Kefalas co-founded The Calliope Joy Foundation and has raised over $700,000 to help children with MLD get treatment. The money also helped establish the nation’s first Leukodystrophy Center of Excellence at the Children Hospital of Philadelphia in 2015.

SPECIAL SALES POTENTIAL/VARIED AUDIENCE: Maria has connections to health and research organizations, patients, policymakers, and industry leaders and they are aware and will be supportive of her book. These include the American Academy of Pediatrics; National Hospice and Palliative Care Organization; National Organization of Rare Diseases; Orchard Therapeutics, Homology Medicines, Takeda, and more.

PROMINENT SOCIOLOGIST: Kefalas is the author of three books, one of which, Promises I Can Keep, has sold 35,000 copies. Thomas Frank, Alex Kotlowitz, WilliaEm Julius Wilson have endorsed her work.

Maria J. Kefalas is a professor at Saint Joseph’s University in Philadelphia and the author or coauthor of three books, including Hollowing Out the Middle, Working-Class Heroes, and Promises I Can Keep. Dr. Kefalas is also an advocate, a philanthropist, a blogger, and the cofounder of the Calliope Joy Foundation, which in 2015 helped fund the nation’s first Leukodystrophy Center of Excellence at the Children’s Hospital of Philadelphia and has supported families receiving treatment for MLD. She lives with her 3 children, Camille, PJ, and Cal, and her dog, Brody, outside Philadelphia. All royalties for the book will be donated to the Cal’s Cupcakes Foundation. Connect with her at mariakefalas.com and on Twitter (@ProfKefalas).

Author Residence: Bala Cynwyd, PA

Author Hometown: Cambridge, MA

Marketing: Pre-pub giveaways to build reader buzz and generate early reviews

Print and online advertising targeting women, parents with children fighting serious illnesses, caregivers, readers interested in literary nonfiction

Academic promotion: family studies, healthcare

Promotion targeting therapy and medical communities and organizations

Author’s organization, The Calliope Joy Foundation, is committed to promoting the book to their networks. She has connections to the American Academy of Pediatrics; National Hospice and Palliative Care Organization; National Organization of Rare Diseases; Orchard Therapeutics, Homology Medicines, Takeda, and more



Publicity: Coverage in national broadcast media, including NPR national programs and local affiliates

Outreach to mothering, family, women’s interest, literary. spirituality, and medical outlets

First serial excerpt placement in mothering, medicine and science, and culture outlets

Outreach to Higher Education magazines

Events in Boston, New York, and Philadelphia



Author Website: www.mariakefalas.com

Author Social Media: twitter.com/profkefalas

“A stunning, candid memoir. Those seeking a relatable story as they process grief and fans of personal memoir will appreciate this book equally for its honest, insightful storytelling.”
Library Journal, Starred Review

“‘When the worst possible thing happens, you have nothing left to fear.’ Maria Kefalas illustrates, with fierce love and unexpected humor, the power of grief to transform and motivate a warrior mother to change the world. The Calliope Joy Foundation, named for the author’s daughter, is doing just that—and providing an invaluable resource within the pages of this book for others who seek to do the same.”
—Marianne Leone, author of Jesse and Ma Speaks Up

Harnessing Grief is an inspiring, searingly honest account of a brave woman going through unspeakable loss—and gaining deep wisdom. Anyone who has suffered tragedy will identify with, and learn from, Maria Kefalas’s terrible, beautiful journey.”
—Martha Beck, PhD, author of Expecting Adam

“Kefalas somehow makes poetry and science, grief and hope, the same powerful language. She is fearless and unsparing about the facts that surround her toddler’s illness, and generous and valiant in describing her efforts to fund the research that might cure someone else’s child sometime in the future. Brave, defiant, she shares her journey through profound grief and rage to a faith in the miracle of love.”
—Meredith Hall, author of Without a Map

“A rapidly unfolding but gently paced story of personal transformation forged in grief. I could not put it down. In it, I recognize the stories of so many other families who have received a fatal diagnosis for their child and rise to be exactly the parents their child needs, with love and hope at the core. Maria finds the blessings in her story and inspires us to see bigger and deeper. She shows us that grief can be a superpower capable of changing the world and saving ourselves. And an added bonus is the captivating telling of the story of gene therapy, the golden promise for children affected by rare disease. I am grateful for this book.”
—Blyth Lord, founder, Courageous Parents Network, and rare disease mom

of 219

Forgotten Password

Please enter your email address and click submit. An email with instructions on resetting your password will be sent to you.

Forgotten Password

An email has been sent out with instructions for resetting your password.